Monthly Archives: February 2011

Rare Disease Day 2011

http://www.rarediseaseday.org/ I hope you all wore your blue jeans today.

Posted in Uncategorized | 1 Comment

May-or-may-not (or, Day 1)

Only one consultation today, with Dr. Whitley, a geneticist at the University of Minnesota.  Not much to say here, but he did offer an alternative to the bone marrow transplant that we are here to investigate, and that is what … Continue reading

Posted in Uncategorized | 2 Comments

Flying the coop

It’s said that a journey of a thousand miles begins with one step. In this case, one wobbly cautious step. Followed by a thousand miles of crawling between parents’ laps on an airplane, 2 feet at a time.  One thousand, … Continue reading

Posted in Uncategorized | Leave a comment

My Son’s Little Melon, Pt. 3

The following is a repost from a series of entries made on my personal Facebook page, a play-by-play leading up to our current situation that has me typing away here in Minneapolis. Oh yeah, the news I was going to … Continue reading

Posted in Uncategorized | Leave a comment

My Son’s Little Melon, Pt. 2

The following is a repost from a series of entries made on my personal Facebook page, a play-by-play leading up to our current situation that has me typing away here in Minneapolis. So, today started off like pretty much any … Continue reading

Posted in Uncategorized | Leave a comment

My Son’s Little Melon, Pt. 1

The following is a repost from a series of entries made on my personal Facebook page, a play-by-play leading up to our current situation that has me typing away here in Minneapolis. Ok, a few of you have asked, and … Continue reading

Posted in Uncategorized | Leave a comment

Armand’s Hope

Up early (or late, we’ll see which) in anticipation of the trip tomorrow. This is the first step on what we hope will be a fruitful journey. I have always had trouble putting my thoughts and emotions into words, at … Continue reading

Posted in Uncategorized | Leave a comment