Monthly Archives: April 2011

Can the kid catch a break?

So, in between all of his doctor’s appointments, travelling, getting poked and prodded, being put into sedation, and his muscle biopsy, the little man’s immune system may have been hammered.  He barely had a sniffle his first 20 or so … Continue reading

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Bands are in!

As a fundraising measure, we are selling our own silcone “Livestrong”-style bands.  They are a blue-and-white swirl with “Armand’s Hope” printed on them.  The “official color” of rare genetic disorders is denim (ie., jeans / genes), so I thought this … Continue reading

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Ok, well, um, in that case…

Lindy had a conversation finally with Dr. Orchard, who is running the clinical trial we visited Minnesota about.  He said that he didn’t feel that the bone marrow transplant would be in Armand’s best interest.  Because of the limited data … Continue reading

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