Monthly Archives: August 2011

Gamer Benefit for Armand

The second fudraiser we are doing on that date (Saturday, September 10th) will be an all-day event at the Chaos Room in Centerville.  You and your friends will be able to purchase 2 hours of console game time (Playstation 3, … Continue reading

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An Afternoon For Armand

Back on the fundraising trail again, with two simultaneous events going on Saturday, September 10th. The larger scale event is a food event where many Dayton-area restaurants, pizza shops, bars, and taverns will donate 10% of sales between 2pm and … Continue reading

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Prayers for Dominic Petrolo

An Australian family of a little boy with GM1 will have to say goodbye this week. I had very briefly gotten to know about Dom and his family’s struggles trying to get help for him in the last few weeks … Continue reading

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Round 2 — FIGHT!

After 2+ weeks beginning his medicine cocktail with strictly Ibuprofen, Armand has been doing well with it. Typically, he would now be starting the second medication, most likely the acne medication (used for it’s anti-bacterial and antioxidant properties) whose name … Continue reading

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Come For The Miracles, Stay For The Treat

Those of you in the Dayton area can help us out in a small way, and also do some lovely tasty damage to your waistline. Every year, Dairy Queen stores across the country celebrate Miracle Treat Day, where a donation … Continue reading

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#daaawwwwww

When Armand was first being tested for a diagnosis, naturally both Lindy and I were shaken. Lindy used to deny it saying “there’s nothing wrong, he’s perfect, there can’t be anything wrong”. I felt the same way, but part of … Continue reading

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Video Explaining Lysosomal Storage Disorders (now with more Baldwin!)

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