Monthly Archives: February 2012

Rhode Island Rare Disease Awareness Event Live Feed

Live streaming by Ustream Come back on Wednesday, Feb 29th from 6p – 8p EST to check out the event live!

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Getting some Pub for the Bub

Just got back from recording an interview with Kim Faris from 94.5 FM here in Dayton to talk about Armand’s story, and promote Rare Disease Day and the Creating Hope Act. I’d like to thank Kim for the opportunity to … Continue reading

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Rare Disease Day 2012 – Official Video

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So He Can Hear Me, He Just Chooses To Ignore Me

Armand had his hearing test today at the hospital, first one he’s had since he got his hearing aids almost a year ago. His hearing has not gotten worse,… in fact in a few cases, his low-tone hearing is almost … Continue reading

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Rare Disease Day 2012

Rare Disease Day this year will be on Feb 29th (it’s a leap year!), so be sure to show your support by wearing jeans or other denim. I will have some news incoming on some support we will be giving … Continue reading

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