Armand had his hearing test today at the hospital, first one he’s had since he got his hearing aids almost a year ago. His hearing has not gotten worse,… in fact in a few cases, his low-tone hearing is almost within the normal range. I noticed on the chart some minor improvement in measurements of mid-range and higher tone hearing, although they still lie in the moderate to severe. The improvements were very small, and there’s not enough for me to say anything is getting better (it won’t), but really at this point it’s the small things.
Also, I received a letter in the mail the other day from the office of Rep. Mike Turner, the Congressman for my local district, pledging support for the Creating Hope Act as it moves through committee. So, again, it’s the small victories.
We have a couple of fundraisers coming up, full information coming along soon (hopefully over the weekend), mainly centered around Rare Disease Day (Feb 29th), and Armand’s birthday (March 18th). Can’t believe he’s going to be 3!