Rx for ASH

Just in case we get some parents or family members of GM1 children looking for help, I thought I’d post an updated summary of what El Jefe is currently taking daily:

Treatment
3 x 100mg Miglustat (Zavesca)

1 x 600mg N-acetylcysteine

200mg Ibuprofen

1ml of 10mg compoud minocycline

Seizures
25mg Lamictal

10mg Onfi

Other
75mg Zantac (to protect his stomach lining from Ibuprofen)

960ml of KetoCal 4:1 formula

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