Monthly Archives: February 2013

Rare Disease Day 2013

For those of you who haven’t seen many of our posts lately, and haven’t seen the banner on our page, tomorrow (Feb 28th) is Rare Disease Day, celebrated in 60 countries worldwide. This is a day to bring awareness not … Continue reading

Posted in Uncategorized | Leave a comment

Happy Anniversary!

Today marks our 2nd anniversary here.  I started this blog mainly to keep track of my thoughts, and to share our experience with a few close friends and family, partially because I was tired of recounting the same stories over … Continue reading

Posted in Uncategorized | Tagged , | Leave a comment

Focus On Dayton – Rare Disease Day

30-minute talk show “Focus On Dayton” courtesy Clear Channel Communications in Dayton, OH. Host Kim Faris talks with Senator Sherrod Brown (D-OH), Dr. Jeanine Utz (PharmD, BCOP, BCPS) from the Advanced Therapies Clinic at the University of Minnesota (and who … Continue reading

Posted in Uncategorized | 1 Comment

Official 2013 Rare Disease Day Video

Video | Posted on by | Leave a comment