Daily Archives: February 27, 2013

Rare Disease Day 2013

For those of you who haven’t seen many of our posts lately, and haven’t seen the banner on our page, tomorrow (Feb 28th) is Rare Disease Day, celebrated in 60 countries worldwide. This is a day to bring awareness not … Continue reading

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Happy Anniversary!

Today marks our 2nd anniversary here.  I started this blog mainly to keep track of my thoughts, and to share our experience with a few close friends and family, partially because I was tired of recounting the same stories over … Continue reading

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