Monthly Archives: March 2013

On This Day In History…..

…I held you for the very first time.  Four years ago today, at 5:20pm, my life changed forever in ways I couldn’t have imagined beforehand.  Well, more likely at about 10:30am when your mommy first called me at work letting … Continue reading

Posted in Whimsical | Tagged , | Leave a comment

Rare Disease Day Media (or, ARMAND’S ON TV LOOKIE LOOKIE!)

We finally have compiled video, audio, and links from our Rare Disease Day media.

Posted in Uncategorized | Leave a comment

*wink wink* *nudge nudge*

We’re finding out all sorts of ways Armand can be susceptible to seizures. We did know that if he was overly tired, that was a trigger. If he wasn’t properly hydrated, that was a trigger. Now we know that constipation … Continue reading

Posted in Medical | Tagged , , , , | Leave a comment