Monthly Archives: August 2013

Charmed, I’m Sure

Posted on August 29, 2013 by

My family and I are attempting to start a larger-scale charitable organization based around helping fund research into treatments and cures for rare diseases, and helping parents, patients, and family members find these treatments.  The organization will be called the … Continue reading →

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Eye Cee You

Posted on August 29, 2013 by

We are up early after a relatively uneventful night, getting Armand his in-clinic eye exam.  He did have on seizure back at the hotel, and Lindy was awakened around 4am by the sounds of a nearly-pukey Armand, but some hands … Continue reading →

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Armand’s Big Day

Posted on August 28, 2013 by

I’ll keep updating this post as the day goes on and we talk to more doctors before or after each procedure he’s having today. First he’ll have an MRI, then up to the OR for his lumbar puncture, and eye … Continue reading →

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If You Have A Special Needs Child….

Posted on August 19, 2013 by

….and are in need of a good proper stroller for them, visit the MacLaren website and check out the Major Elite push stroller. Use the code MAJOR to get 25% the chair and all accessories, good until the end of … Continue reading →

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