I’ll keep updating this post as the day goes on and we talk to more doctors before or after each procedure he’s having today. First he’ll have an MRI, then up to the OR for his lumbar puncture, and eye exam under sedation, and (new this time around) a dental cleaning under sedation, which will also include x-rays and possible gingival contouring (basically, using a laser or heat to cut his gums back where they have grown around his molars).
Last night he had a rough night with 8 seizures between 9:00 p.m. and 7:30 a.m., along with some vomiting around 2 a.m. Naturally he got no sleep, but he was in a pretty good mood this morning on our way in and in the waiting room here, moving his (good) leg and smiling a bit. After taken back into the prep room, we waited a few hours, meeting with the various nurses and anesthesiologists, and Armand got his eye drops. He had an odd reaction which freaked Lindy out a bit, where his face and chest got flushed and very hot, and it was traced to some of the ingredients in the eye drops. After some cool towels on his face, he was fine.
12:15 p.m. He just went back with Lindy accompanying him. He’ll have the MRI first, and we’ll get lunch.
4:09 p.m. Almost falling asleep here in the waiting room when Dr. Whitley came out to let us know that everything went fine with the MRI and the spinal tap. His pressure is still well within the normal range (16.8), and Dr. Whitley was still in the room when the eye doctors were in taking the pictures. She told Dr. Whitley that everything seemed to be consistent with the past photographs of Armand’s eyes. We always like steady.
5:16 p.m. Dr. Beiraghi just came out to tell us that his dental workup went well, he is on his way to waking up. His teeth are perfect (she is jealous), no cavities, but he did have some gingival overgrowth especially in back that they cauterized. They did X-rays and found that between his two front permanent teeth, there’s a random extra tooth growing (all the better to bite our fingers off with). Also, there was some calculus on his teeth, which may lead to increased math skills when he grows older. We should be headed in to see him shortly.