This blog will chart the medical journey of Armand S Hayes, who also plays my son in real life. He was recently diagnosed with GM1 Gangliocidosis (Type II), a rare genetic disorder with no confirmed treatment or cure. In this blog I will try to convey the anticipation, fear, love, and hope that those who are close to Armand feel each step of the way as we attempt to find a cure, or at least stop the progression of this disorder. In February 2011, we left from our home in Ohio to the University of Minnesota to begin steps to take part in a clinical trial that we thought would provide Armand with a stem cell transplant. The rest, well, is being documented for history.
Armand turned 3 in March.