Category Archives: Deep Thoughts

Notes, Quotes, and Billy Goats

There was (maybe still is, I’m not sure) a sports columnist for the local newspaper by the name of Gary Nuhn. Fairly unremarkable, sort of a homeless man’s version of Rick Reilly, he had an occasional column that he called … Continue reading

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So,…. You’re Having A Baby

Recently, I’ve had a few friends who have spawned some amazing children – happy, playful, learning, doing.  I see the pictures on facebook and twitter, and part of me hopes that they’re okay (EDIT: I don’t mean that another part … Continue reading

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Open Letter to Armand

I miss my Pu. I know you’re still here, but I already feel like I’m losing you. I miss our cookie night, when you’d steal a few from me, hide a few more, and happily suck down some milk or … Continue reading

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Prayers for Dominic Petrolo

An Australian family of a little boy with GM1 will have to say goodbye this week. I had very briefly gotten to know about Dom and his family’s struggles trying to get help for him in the last few weeks … Continue reading

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Living in a bubble, with a Bubble

I’ve been thinking the past week or so about how oddly lucky we are. Sometimes when initially faced with a tragedy, your only focus (sometimes rightly) is on your own situation. Between co-ordinating doctor’s visits, medical travel, fundraising, this blog, … Continue reading

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