Tag Archives: ketogenic diet

Day Three

Today was a pretty easy day. We met with Dr. Karachunski about Armand’s MRI, which came back unchanged from his previous tests as far as progression and white matter.  He said basically to keep doing what we’re doing, that we … Continue reading

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Rx for ASH

Just in case we get some parents or family members of GM1 children looking for help, I thought I’d post an updated summary of what El Jefe is currently taking daily: Treatment 3 x 100mg Miglustat (Zavesca) 1 x 600mg … Continue reading

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RSVPu (UPDATED)

We had our “exit interview” with Drs. Whitley and Utz this afternoon. We had already seen some of his tests results as early as while he was in recovery, and those levels were normal and looking good (albumin, blood glucose, … Continue reading

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