Tag Archives: minneapolis

Eye Cee You

We are up early after a relatively uneventful night, getting Armand his in-clinic eye exam.  He did have on seizure back at the hotel, and Lindy was awakened around 4am by the sounds of a nearly-pukey Armand, but some hands … Continue reading

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Armand’s Big Day

I’ll keep updating this post as the day goes on and we talk to more doctors before or after each procedure he’s having today. First he’ll have an MRI, then up to the OR for his lumbar puncture, and eye … Continue reading

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Day Three

Today was a pretty easy day. We met with Dr. Karachunski about Armand’s MRI, which came back unchanged from his previous tests as far as progression and white matter.  He said basically to keep doing what we’re doing, that we … Continue reading

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Updating, Updating, Updating All The Things

I am merely putting this post here as a placeholder as we get news about the day.  Sort of a liveblog of the parade of doctors as they come out.  Bookmark this page and I will update as I can. … Continue reading

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Day One

Last night was a bit of a rough night for Armand.  He threw up a bit during the evening, then woke up biting his lip during the night, followed by five of his “scary” seizures during the night (his first … Continue reading

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Riding Solo

Longtime readers may note that Armand and I used to engage in “cookie nights”, where I would open a box of Soft Batch Chocolate Chip cookies, and he would systematically claim most of the cookies for himself by simply taking … Continue reading

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RSVPu (UPDATED)

We had our “exit interview” with Drs. Whitley and Utz this afternoon. We had already seen some of his tests results as early as while he was in recovery, and those levels were normal and looking good (albumin, blood glucose, … Continue reading

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